National Paediatric Diabetes Audit – Parent and Patient Reported Experience Measures (PREMs) 2019

Reports, Patient Focused Reports | Published: 12 Nov 2020

This national report from the National Paediatric Diabetes Audit (NPDA) covers the experience that patients and parents/carers receive as they interact with the NHS through attending Paediatric Diabetes Units (PDUs) providing care.

Collecting Patient/Parent Reported Experience Measures (PREMs) data complements the routine collection of other health check and diabetes outcomes data for the NPD) by:

  • enabling children and young people with diabetes and their families to provide anonymous feedback on what they value about their care, and how it could be improved
  • assessing whether care provided is meeting standards considered important by children and young people with diabetes and their families
  • providing local teams with insights into the experiences of the families they serve that can be used to improve engagement and outcomes

This is the first national PREM report published by the NPDA. Whilst PREM data was collected by the NPDA in 2012/13, 2013/14 and 2015/16, the data were used to produce local reports for PDUs only.

The surveys were conducted over a period of 6 months between 1 February 2019 and 31 July 2019. 13,178 PREM responses were received, of which 6,165 were from children and young people and 7,013 from parents and carers.

You can read the report by clicking on the link below. Please note you will be prompted to register your details so you can receive updates. You may skip the registration process if you prefer.

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National Paediatric Diabetes Audit – Parent and Patient Reported Experience Measures (PREMs) 2019