NCEPOD: Disordered Activity? (epilepsy care for adults)

Reports | Published: 08 Dec 2022

This report, the full title of which is Disordered Activity? A review of the quality of epilepsy care provided to adult patients presenting to hospital with a seizure, is published by the National Confidential Enquiry into Patient Outcome and Death (NCEPOD).

Data from 610 clinical questionnaires, 264 sets of case notes and 158 organisational questionnaires were used to assess the quality of care provided to adult patients with a pre-existing epilepsy disorder or who were subsequently diagnosed with epilepsy and presented to hospital following a seizure, between 1st January and 31st December 2020.

Key findings include:

  • It was identified that action could be taken at all points of the patient pathway to improve the quality of care, with a particular call to alert patients’ ‘usual’ epilepsy team when they present with a seizure
  • There is a need to improve documentation as, for example, 26.1% patients did not have their anti-seizure medication (ASM) written in their notes
  • In 38.5% hospitals, specific information or education regarding epilepsy was not routinely provided to patients until their first clinic appointment, which may be many weeks after discharge.

Read the full report: You can read the report, with all key findings and recommendations, by clicking on the link below.

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NCEPOD: Disordered Activity? (epilepsy care for adults)