Learning disability mortality review programme

Supplier info

Name: Pauline Heslop
Org: Norah Fry Research Centre
Phone: 0117 331 0973
Website: LeDeR Programme

HQIP contact

Tasneem Hoosain

Programme overview

The Learning Disability Mortality Review Programme (also know as LeDeR) was established to drive improvement in the quality of health and social care service delivery for people with learning disabilities (LD) by looking at why people with learning disabilities typically die much earlier than average. The programme has been commissioned by HQIP on behalf of NHS England and is being led by the University of Bristol’s Norah Fry Research Centre.

Through local and national retrospective reviews of deaths, health and social care professionals, and policymakers will be supported to understand causes of death and amenable factors contributing to the overall burden of excess premature mortality for people with learning disabilities. The programme will identify variation and best practice and assess the impact of service change leading to the identification of key recommendations for improvement.

The National Learning Disability Mortality Review Programme is working with other agencies such as the Learning Disability Public Health Observatory and the Transforming Care (Winterbourne View) Improvement Programme to reduce such health inequalities faced by people with learning disabilities.

Additional information on all HQIP-commissioned projects is available on the NHS Trusts page, which includes the recommendations repository, infographics compendium, 9 month publication schedule, impact report, and National Clinical Audit and Enquiries Directory. For further information about this project, please contact the project team directly using the contact details listed in the ‘Supplier Info’ section above.

Accessing data

Data collected on behalf of HQIP by all NCAPOP projects is routinely reported and these reports are available in the ‘Latest resources’ section.

For details of how to apply for data that is not in the public domain, please see HQIP’s data access webpages.

Details of the contracts that HQIP awards are available at: www.gov.uk/contracts-finder.

Related resources