Heart: National Congenital Heart Disease Audit

Supplier info

Name: Sarah Ajayi
Org: National Institute for Cardiovascular Outcomes Research (NICOR)
Phone: 0203 765 8551
Website: NICOR

HQIP contact

Tasneem Hoosain

Programme overview

Congenital heart disease refers to any defect of the heart present from birth. It includes structural defects, congenital arrhythmias (heart beats with an irregular or abnormal rhythm) and cardiomyopathies (abnormal heart muscles). At least eight in every 1,000 babies are born with a heart or circulatory malformation, although only a quarter to a third of these are detected by scans (antenatal ultrasound). Diagnosis and treatment of complex heart defects has greatly improved over the past few decades and almost all children who have heart malformations survive to adulthood.

Acquired heart disease develops after birth and may present in childhood and examples include inflammatory heart disease such as myocarditis or rheumatic heart disease, as well as most arrhythmias. Congenital heart disease is relatively rare and requires specialist clinicians who have experience in treating paediatric and adult patients. The National Congenital Heart Disease Audit profiles every specialist congenital heart disease centre in Great Britain and Ireland, including the number and range of procedures they carry out and survival rates for the most common types of treatment.

Part of the National Cardiac Audit Programme (NCAP), the audit aims to support all centres undertaking congenital cardiac surgery and interventional procedures in the United Kingdom to improve the quality of specialist congenital cardiovascular care by providing information on: activity levels, access to antenatal diagnosis, the quality of care and patient outcomes, and the success of cardiovascular antenatal diagnostic screening.

NHS England and Improvement have confirmed that on 24th June 2022 the NICOR cardiac audits, currently commissioned by HQIP (and hosted by Barts Health NHS Trust) will be moving to NHS Arden & GEM Commissioning Support Unit. Much of the NICOR cardiac audit work will continue as before. HQIP, Barts and Arden & GEM are all working to ensure as seamless a transition as possible.

As HQIP will no longer be the commissioner or data controller for the NICOR cardiac audits, please contact the NICOR team directly if you have any queries about the transition of the cardiac audits.

Should you require any assistance on the progress of your data access application please contact the NICOR data sharing inbox ([email protected]) and copy in Arden & GEM (on [email protected].

Additional information on all HQIP-commissioned projects is available on the NHS Trusts page, which includes the recommendations repository, infographics compendium, 9 month publication schedule, impact report, and National Clinical Audit and Enquiries Directory. For further information about this project, please contact the project team directly using the contact details listed in the ‘Supplier Info’ section above.

Accessing data

Data collected on behalf of HQIP by all NCAPOP projects is routinely reported and these reports are available in the ‘Latest resources’ section. The reported data is also placed on the data.gov.uk website.

For details of how to apply for data that is not in the public domain, please see HQIP’s data access webpages.

Details of the contracts that HQIP awards are available at: www.gov.uk/contracts-finder.

Related resources