UK Renal Registry

The UK Renal Registry collects and analyses information on all patients receiving Renal Replacement Therapy in England, Wales and Northern Ireland and also receives data from the Scottish Renal Registry.

The information is retrieved from clinical information systems used for the care of these patients in each centre providing RRT. A quarterly data extract is sent to the Registry. Once the database is locked, data are subjected to statistical analysis and clinical interpretation, resulting in the publication of an annual report, including chapters on incidence, prevalence, survival, dialysis dose, management of anaemia, kidney transplantation, a separate report from the paediatric registry, and comparisons with other national registries. These analyses include centre-specific analyses, allowing de-anonymised comparison of all measured clinical outcomes, after adjustment for casemix for age, ethnicity, primary cause of kidney disease, and co-morbidity.

The Registry is part of the Renal Association and has charitable status. It has a close working relationship with UK Transplant, part of the National Blood and Transplant Authority. The Registry is working in partnership with the National Clinical Audit Support Programme of the Information Centre to deliver the Vascular Access component of the Healthcare Quality Improvement Partnership commissioned National Kidney Care Audit.

Data is published quarterly and the next annual report is due to be published in 2009.

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