National clinical audit & registries
Clinical databases and registers
Clinical Outcome Review Programmes
Multi-site Clinical Audit Programme
National Clinical Audit and Patient Outcomes Programme
National Clinical Audits for inclusion in Quality Accounts
National Joint Registry
New topic proposals for national clinical audits process 2011
Other national clinical audits
Specialist Societies Mapping Document
Surveillance registers for congenital anomalies
The role of NAGCAE
The Transparency agenda and NCAPOP
What is a national clinical audit? Achieving high quality national clinical audit

UK CF Registry

The UK CF Registry was established by the Cystic Fibrosis Trust in collaboration with the CF community with the primary objective of raising standards of care in the UK.

Web based software enables the collection of a standardised dataset across all paediatric and adult specialist CF Centres and associated network clinics throughout the UK.

The Registry can be accessed locally and regionally for audit of individual specialist Centres and clinics. The multicentre dataset facilitates national audit, both cross-sectional and longitudinal.

For further information please contact helpdesk@portcf.org.uk

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