HQIP Directory of Clinical Databases and Registers

December 2011

HQIP is pleased to announce the publication of the third edition of the Directory of Clinical Databases and Registers.

This resource lists together as many relevant projects which collect systematic data on procedures, conditions and services in healthcare as possible. Bringing together these clinical registers, databases and surveillance registers will enable us to build a free online database for everyone to access.

See the Directory of Clinical Databases and Registers >>

Please note that this is the third edition of a live document which we will regularly update as new notifications are received, submission details change or corrections need to be made.

Just complete and return the simple questionnaire (see also below) and email it to update.directory@hqip.org.uk with basic details of any relevant project. These could simply be projects you are aware of, or that you or your organisation supply data to, or maybe a project which you or your organisation run. We hope that you can help us identify these projects.

Essentials:

• Simple questionnaire >>
• FAQs >>
• Funding & funding criteria >>
• Introductory letter from HQIP CEO Robin Burgess >>

More details and background information:

Relevant projects include:

• Databases
• Registers
• Surveillance registers

They do not include:

• Clinical Audits
• Clinical Trials

What does HQIP need to know?

• The title of the project
• As much supporting information as you can provide on content of the project and any contact details you may be aware of

Who do I contact?

• Please email: update.directory@hqip.org.uk for more information.

Background:

The purpose of the project, supported by the Department of Health, is to create searchable database and record of those projects, which are of so much value to clinicians, and to patients, which gather data on the incidence and occurrence of these elements of healthcare.

The purpose is not regulatory, or to set standards; it's simply to make the list available publicly in one central location, so people can see  at a glance what is being collected and who to approach for information about a specific condition.

By their very nature, projects vary significantly: some collect patient identifiable data; others anonymised. Others collect data just about patients, some only about procedures. Some are national; some regional; some local. They are a diverse set of projects, but all have the aim of improving care and the understanding of conditions and procedures.

We have already approached some people we know are already running such projects. We are now at stage 2 where we go out to a wider set of people who may have further information, either simply about such projects that they know about, or that they supply data to, as well as those people who run them who will be asked to supply information, whom we have not yet identified.

We will only collect clinically useful information about these projects; and we will consult people as to what data they think is useful to put into the database.

We look forward to hearing from you.

Funding & funding criteria: